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Richard Modiano's avatar

Your post really moved me Tosh. That sense of living on a different clock—the medical clock—rings painfully true. Waiting, adapting, measuring days not by plans but by symptoms and procedures can feel like being quietly exiled from ordinary time. I admire the way you’re meeting December 23 with such clarity and even a wry grace, calling it a Christmas present. That kind of reframing takes courage.

So much of what you describe—the exhaustion, the dizziness, the careful choreography of eating, sitting, sleeping—feels familiar to me. My own health declined sharply after I was hit by a car while riding my bike five years ago. Since then, my body has never quite returned to the self I assumed was permanent. Balance, focus, stamina—things I once took for granted—now require calculation and restraint. Like you, I learned to organize my days around avoiding falls, managing energy, and accepting that I no longer have the strength to ride uphill on my own power (I bought an e-bike to compensate.)

That frustration—wanting to engage deeply with books or thought, but finding your body won’t cooperate—is its own quiet grief. And yet there’s also something human and sustaining in the small salvations: ice cream and peanut butter, a show that pulls you out of yourself, those moments when illness loosens its grip just enough to let you forget it’s there.

I’m really glad you found a way to stop the weight loss, and I hope the biopsy brings clarity, or at least a next step that feels less like free fall. Please know you’re not alone in this strange, narrowed existence. Many of us are learning, reluctantly and imperfectly, how to live inside altered bodies and altered time. I’m sending you steadiness, rest where you can find it, and the hope that this season—though it may be—will eventually give way to something gentler.

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robert soffian's avatar

Hope you get good and useful results from the doc. Sending my best for your recovery,. R

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